Comments on: Fight fibromyalgia

By: Fran

Fran — Thu, 02 Feb 2012 15:37:18 +0000

oh I didn’t say our M.S group has hydrotherapy so find that very helpful, physio in the warm water better than any tablets

By: Fran

Fran — Thu, 02 Feb 2012 15:33:32 +0000

I have recently been dx, well I more or less did it myself after having lots of pain in my hips and shoulders and neck and my hips felt very bruised with no bruise, had bld tests xrays all clear, suggested fibro to doc, as I already have M.S she said oh you don’t want another chronic illness, and said no more so I have been seeing another doc in the practise who has been a lot more pro-active, she has found all my tender points has pt me on antidepressant to see if that helps
I’m not sure if I’m sleeping better the flareups hadn’t happened again til 2 days ago and i could’t lift up my arms and didnt get dressed all day

By: Helen Levin

Helen Levin — Sun, 01 Jan 2012 09:35:33 +0000

I have had been diagnosed with F some 20 years ago. I work out in the gym daily which I have always found to be a real help and in general I manage. Recently I have been experiencing sharp “needle like” pains in my wrists and eyes along with a sharpness giving me some internal discomfort.
Has anyone else experienced this as I am unsure as to whether these are part of the F experience?

By: Hilary Graham

Hilary Graham — Mon, 22 Aug 2011 11:47:35 +0000

I was diagnosed with FMS in 2002 after 6 years of going to every specialist under the sun and being told there was nothing wrong. The relief of finding that what I was suffering from was a known condition was incalcuable. At that point I could hardly walk and was seriously thinking that I would have to give in and use a wheelchair. My quality of life was nil. Once I had been diagnosed and realised it wouldn’t damage anything, in fact would be beneficial, I started an exercise program which made a tremendous difference. I have tried many forms of exercise over the years and basically have found that as long as I do some form of aerobic exercise at least twice a week for at least 30 minutes it keeps the worst at bay. I take Gabapentin and Tramadol – on the one hand I’m not really keen on taking medication for the rest of my days but on the other hand I find that they take the edge of the pain and allow me to lead a relatively normal life. I gave up my full time job as it was too much to cope with and I now work 3 days a week which obviously involved some major cutbacks financially. I do office work so it’s not strenuous and my employers know about and understand my condition. As long as I make sure I take breaks now and again to do some stretches (out of sight of my colleagues!) and take a half hour at lunch time to get right away from my desk I manage quite well. For exercise I now use Wii Fit and Wii Zumba so that I can use them at any time and don’t have to make a special effort to go anywhere. To all those FMS sufferers out there – THERE IS HOPE. I went from almost wheelchair bound to living a pretty active normal life. It would be lovely to be pain free and have plenty of energy but I make the most of what I have. As others have said, listen to what your body tells you. Do what you need to do but slow the pace. Sometimes you just have to grit your teeth and work through it but make sure you have proper relaxation time too. The most important thing of all, that I can’t emphasise enough is exercise. Keep your body moving or everything seizes up and it becomes much harder to start again.

By: Maria of Stratford-upon-Avon

Maria of Stratford-upon-Avon — Wed, 27 Jul 2011 12:27:39 +0000

Just reading comments from other Fibromites gives me comfort. People do look at you and say – well there’s nothing wrong with you! Anyone looking for support should contact Fibromyalgia UK, which is a very supportive organization, as there are small support groups across the country. I am still working but fear it wont be long before I may either have to give up or go part-time.

By: helen

helen — Tue, 26 Oct 2010 11:36:37 +0000

Hi,
I have had fibro now for 10 years. I usually lead a busy life, but today I’m hurting all over, it must be the cold weather. Its TaiChi day, which is a lovely gentle exercise, but I didn’t want to go out, even to that, which is a shame! Also I am doing a CBT course, which is mainly for my low sefl-esteem, and I try to be positive about things, but on a day like today, all I can do is stay in, try to keep warm, I’m extremely cold; although my fflat is warm, and look forward to my good days, which I admit have been quite often, perhaps it is the cold weather causing problems. I always think there is tomorrow and look on the bright side. When I feel low, I must remember I am not on my own. knowing there are so many people suffering with the same symptoms as I have. So good luck to everyone.

By: marilue20

marilue20 — Sat, 04 Sep 2010 08:18:09 +0000

Hi, I live in Malta and have been diagnosed with FM since 2 years ago but have been suffering for much longer than that. It was a relief to be able to label my condition of numerous symptom instead of feeling as though I was going out of my mind. One of my biggest problems is an overactive bladder, which has been more or less under control since my diagnosis as I was started on amytripiline which helps alot and I took a 10 session treatment of accupuncture at the chinese clinic in our state hopital which really improved my bladder problem just after the 2nd session. I would recomend it to anyone who is finding it difficult to shake of the worst of the symptoms. I couldn’t believe the difference. I had been taking Ditrusitol for 2 years for nothing. They didn’t help my bladder and cost a fortune and made my mouth go very dry which started to rot my teeth. Thank God my GP realised it was FM and changed my treatment. I still suffer flaire-ups where the pain and exhaustion over take my life completely especially in the cold and after an emotional upset of physical strain but at least one of my symptoms is pretty much controled.

By: H

Sat, 31 Jul 2010 13:01:05 +0000

Hi, I have been severely suffering for many years now. My story is long and complex, but to try and cut the story short: a so called cranial osteopathic ‘clinic’ i went to caused injuries with their incorrect manipulations to my head, shoulders, pelvis, knees and feet. They are all out of synch with each other, and the bones in my skull were manipulated in such a way that left me in severe agony that i couldnt even lift my head or chew food for quite a while.The severe pressure and pain constant spasm my muscles and surrounding structures were in and the fact that my musecles were in such a mess that i couldnt fall asleep due to the crazy amount of strain they were under..this severe sleep disturbance started fybromylgia that became so severe. I couldnt even close my eyes in a relaxed manner because of the messed up structures in my face and head.this becamse a downward spiral with the severely disturbed sleep from my state, which then went on to exacerbate my state and so on. Docotrs didnt know how to deal with me, most of them just blanked me and didnt want to deal with this. the only thing that saved me was constant reiki to all parts of my body….this is what made me survive something i cant even put into words.I’m looking for a specialist near london to give me an official diagnosis, so at least i can get some medications that i need.
there is hope, and there are many methods i have used to help me. Jacob teitelbaum in the USA is the leading speicalist in this area and his book almost saved me.
mAlcolm humphreys, could you tell me who the specialist at st thomas hospital is? i really want to go and see him. pls let me know if yo can, i would be ever so grateful.
H

By: Karen-Marie

Karen-Marie — Sun, 25 Jul 2010 16:59:22 +0000

I have had Fibromyalgia since 2005 x i take co dydramol 4 times a day for the pain and amitryptylline to help me sleep x I have anxiety attacks too x Im currently a student and study mainly at home due to the good days and bad days x The winter is the worst for me and thats when i am at my worst x The summer is alot better for me but the pain is always with me but its at its best at this time of year. Not many people know about this even now x I tell people I have FMS and they say “whats that!” My teachers dont even know what it is when iI tell them and I feel if they knew about the symptoms and the syndrome then we would get alot more understanding from them x Like one lady said “people say but you look okay and you want to throttle them!!” I know how you feel because I have that x one guy told me being on pain killers was bad for me but without them I would be bed ridden x We need to bring awareness to FMS more than there is now x I hope there is a cure soon (as stated above) as If I had one wish it would be to have my health back x

By: james diskin {76)

james diskin {76) — Sat, 24 Jul 2010 12:52:56 +0000

I believe it is essential for a person to have a hobby they enjoy and join a similer group and get involvd It has been a lifeline for me ,