Comments on: Fight fibromyalgia

By: Karen-Marie

Karen-Marie — Sun, 25 Jul 2010 16:59:22 +0000

I have had Fibromyalgia since 2005 x i take co dydramol 4 times a day for the pain and amitryptylline to help me sleep x I have anxiety attacks too x Im currently a student and study mainly at home due to the good days and bad days x The winter is the worst for me and thats when i am at my worst x The summer is alot better for me but the pain is always with me but its at its best at this time of year. Not many people know about this even now x I tell people I have FMS and they say “whats that!” My teachers dont even know what it is when iI tell them and I feel if they knew about the symptoms and the syndrome then we would get alot more understanding from them x Like one lady said “people say but you look okay and you want to throttle them!!” I know how you feel because I have that x one guy told me being on pain killers was bad for me but without them I would be bed ridden x We need to bring awareness to FMS more than there is now x I hope there is a cure soon (as stated above) as If I had one wish it would be to have my health back x

By: james diskin {76)

james diskin {76) — Sat, 24 Jul 2010 12:52:56 +0000

I believe it is essential for a person to have a hobby they enjoy and join a similer group and get involvd It has been a lifeline for me ,

By: Gay Lewis

Gay Lewis — Sat, 24 Apr 2010 18:04:32 +0000

Hi, I have diagnosed myself as having fibro as 5 years ago I tripped over hitting my head and knees and ever since I have suffered pain mainly in my right leg but tender muscles all over. I seem to have the majority of symptoms listed and have anxiety.
I have tried natural remediedsto increase seretonin but these made me more anxious even though they seem to relieve the pain. I do have periods of time when the pain goes and this seems to be when I am generally more relaxed.
I would be gratful for advise as I want to continue to lead a full and active life

By: angela hair

angela hair — Wed, 07 Apr 2010 16:03:46 +0000

I know exactly how you feel. I have recently been diagnosed with fibro and I also have joint hypermobility. I also find it difficult to pace myself and am also off work. I am considering ill health retirement because my job is very demanding and I can not tell from one day to the next how I am going to feel.

I suffer a lot of pain and get depressed at times and sleep is a nightmare unless I take lots of painkillers. So I do understand how you feel.

By: Mary O,Brien

Mary O,Brien — Mon, 05 Apr 2010 18:36:40 +0000

I was diagnosed last September when the pain was all over my body and I was unable to work due to the exhaustion. I am still off work however the pain is beginning to get under control with pain relief. I am finding pacing myself the most dificult thing to do. I cant work out what triggers the pain but I know when I have over done things because of the exhaustion and pain. I desperatley need to return to work but as I never know from one day to the next how I will feel and what my capabilities will be, it has not been possible yet.

I do try to keep a positive attitude and if I cant do something one way because of the pain I just adapt and find a different way to do it.

Can anyone advise me how to move forward and as the consultant said ‘Pace yourself and learn to say know or you will crash again’

By: malcolm humphreys

malcolm humphreys — Sun, 04 Apr 2010 01:21:21 +0000

I was diagnosed with FIBROMYALGIA in January 2009 by a Specialist doctor from ST Thomas Hospital London..Where they have a Special unit called The INPUT Pain Management Unit..They deal with All types of Pain including Fibromyalgia..I was Lucky to attend their 4 week coarse,Which i must say helped me understand this condition and give me answers to All of my questions,As well as giving me practical solutions..In my Experience there is NO pain killer that can take the Fibromyalgia pain away totally…But there is HELP out there..

By: Linda Morris

Linda Morris — Tue, 30 Mar 2010 13:03:13 +0000

Hi,
Don’t give up, I have suffered for years since a traumatic child birth. My shoulders have been my worst areas, even now as I am improving. Keep a positive attitude, and really, even though initially I ache, swimming works fantastically for me, if I can go twice a week, I feel like a different person! I also suffer from bad muscle spasms in my shoulders, swimming helps with this also and keeps it at bay.
Make sure you eat healthy and try the deep breathing etc.. It hasn’t gone completely but there are things worth trying that help you to manage the symptoms, try them and good luck. X

By: Gillian Wright

Gillian Wright — Thu, 04 Mar 2010 21:47:36 +0000

Hi Helena, just wanted to say you are not on your own and I know how awful the isolation is when you are housebound. I bet on the odd day when you struggle outdoors people say “but you look okay” and you want to throttle them!! Here’s hoping for a cure asap, I’m fed up with the itching and soreness caused by my Butrans patches!!

By: Helena Slack

Helena Slack — Mon, 15 Feb 2010 13:34:33 +0000

I have suffered with terrible pain all over my body, extreme fatigue and numbness in my arms,legs and feet. This is a debilitating illness which changes your life. I am so pleased this condition has now been recognized as I have felt isolated due to the fact that no-body understood my symptons. My life has changed so much because one day I can cope with the pain, then the next day or even days I spend in bed. I really hope that a cure is found as I just want to be pain free and live a normal life.